I deeply appreciate the response to this piece as well as the opportunity to have been a part of this anthology. For a number of reasons, I will most likely not be publishing on Medium and encourage anyone who is interested in following my story to visit my site at Mee-ok.com where you can find my latest pieces as well as keep up with me via my social media links. A number of pieces are in the pipeline as well as a book. Thank you so much for such encouragement with my very first published piece. It changed everything for me.
November 2010. I had awoken like any other morning — late, swearing, and still stoned from the night before. But on this particular morning, I found myself pinned to my bed by a throbbing pain tearing through my body, too stiff to tremble. And it was only the beginning. Over the next three years, I would lose everything, in addition to my health — my partner, my career, my dreams — and gain only a caretaker and a grim diagnosis from a Harvard doctor: scleroderma, an autoimmune disease that promised to torment and destroy my every cell while I helplessly…